The Current State of Amanda

It’s been almost a year since I last blogged. Wow a whole lot can happen in a year. I haven’t shared much on my blog because I didn’t want to bore anyone with my daily random stuff, however, blogging is very therapeutic for me. So, I’m going to try this again but with a different mindset. Along with sharing my current status I really want to share some of my tips and tricks that help me make it through my migraineland that I live in. Maybe it will help others. Lastly, I want to bring a better understanding about what it feels like to live life with migraines, or with a chronic hidden illness. So I hope you enjoy joining me along in this journey.

artwork by SandraWinther on DeviantArt

A little bit about my condition

If you are still reading this welcome to my blog. My name is Amanda and I suffer from chronic migraine and fibromyalgia. I have had migraines since I was a child, so I’ve pretty much dealt with them my whole life. Fibromyalgia is something I’ve learned about in the past few years and just adds some extra layers to my day to day issues.

(I want to start by throwing out this disclaimer. I am not writing this blog to gain sympathy or try and have people reach out to me with advice on medicines or treatments. That may sound harsh but I just want to share. For me pain is part of my normal everyday life. I have amazing doctors helping me and a current treatment plan in progress to see if it will help reduce or eliminate this problem from my life.)

Most of my migraines last for months at a time. I am currently on day 26 of this current migraine and its driving me crazy!!! All of my normal migraine arsenal of weapons just haven’t been able to touch it. I’m really hoping I don’t end up having to go to the ER.

Previous to my current form of treatment I was in the ER pretty much every weekend. I spent a lot of my time trying to hide the bruises up and down my arms when I was around work or with family. I even get them so bad that sometimes I would pass out. Once David came home and found me totally unconscious on the bathroom floor. It really scared him. I’m really blessed that he only works 7 miles from the house now. If I need him, he can get here pretty quickly. We also invested in making our house a smart house so if I need to text him and can’t get to the phone all I have to do is talk to google. It also makes it so much easier to turn the lights on and off when I am in the middle of an episode.

Let’s talk triggers. My biggest triggers are as follows:

  • Weather
  • Noise
  • Smells
  • Sunlight
  • Sound
  • Stress
  • Lack of sleep
  • Not eating on a normal schedule

Weather is the trigger that gets me the most. I live in Richmond, Virginia and the weather here is crazy. One day it will be 75 (like yesterday) then in the 20’s the next day. The up and down of the barometric pressure is what kills me. If only they could invent a pill to deal with barometric pressure I might stand a chance, but as we all know, you can’t control the weather. So I am pretty much at its mercy. So, if there is going to be a rough week weather wise I will focus on the triggers that I can control and try to manage those the best that I can. It’s currently raining and in the 70’s today after having been in the freezing 30’s previously so you could say today is a high trigger day. I’m sitting here with all the lights off in the house and my tv as low in volume as I can stand it. I can’t talk on the phone at all. Even writing this blog is super challenging so I’m going to have to wrap it up. Hopefully I haven’t bored you to much. I look forward to sharing more with you.

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